<a href=\"/content/nemours/us/en.html\">¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾«Æ· Children's Health</a> | <a href=\"https://kidshealth.org/\">¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾«Æ· KidsHealth</a> </p>\r\n"}} id=text-b0f8b48d01 class=cmp-text>
Rhizomelic Chondrodysplasia Punctata Registry
Clinical Trial</h3>\r\n<p><strong>Offered by:</strong> ¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾«Æ· Children's<br>\r\n<strong>Location:</strong> Delaware Valley</p>\r\n<h3>Trial Name</h3>\r\n<p>The study team hopes to learn more about these diagnoses and improve the care of people with it by establishing this registry.</p>\r\n<h3>What is the trial about?</h3>\r\n<p>The goal of this registry is to collect information on individuals with Rhizomelic Chondrodysplasia Punctata (RCDP) and other related conditions. The study team hopes to learn more about these diagnoses and improve the care of people with it by establishing this registry.</p>\r\n<h3>Who can participate?</h3>\r\n<p>Individuals with RCDP types 1, 2 and 3 and other closely related conditions as diagnosed by a physician are eligible for this registry.</p>\r\n<h3>What is involved?</h3>\r\n<p>This study involves only the collection and storage of data extracted from the medical record. There are no special procedures, visits, or expectations of you as a result of participation in this registry. You will not be asked to have any specific testing for the sole purposes of research.</p>\r\n<h3>Consent Documentation</h3>\r\n<ul>\r\n<li><a target=\"_blank\" href=\"/content/dam/nemours/wwwv2/filebox/research/rcdp-parental-permission-form.pdf\">Parental Permission for Participation in an Observational/Noninterventional Research Study</a></li>\r\n<li><a href=\"/content/dam/nemours/wwwv2/filebox/research/record%20release%20form.pdf\" target=\"_blank\">Authorization to Use/Disclose Protected Health Information</a></li>\r\n<li><a target=\"_blank\" href=\"/content/dam/nemours/wwwv2/filebox/research/RCDP-Participant_Brochure_2014.pdf\">RCDP Participant Brochure</a></li>\r\n</ul>\r\n"}} id=text-c8e63d4b9e class=cmp-text>
Clinical Trial
Offered by: ¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾«Æ· Children's
Location: Delaware Valley
Trial Name
The study team hopes to learn more about these diagnoses and improve the care of people with it by establishing this registry.
What is the trial about?
The goal of this registry is to collect information on individuals with Rhizomelic Chondrodysplasia Punctata (RCDP) and other related conditions. The study team hopes to learn more about these diagnoses and improve the care of people with it by establishing this registry.
Who can participate?
Individuals with RCDP types 1, 2 and 3 and other closely related conditions as diagnosed by a physician are eligible for this registry.
What is involved?
This study involves only the collection and storage of data extracted from the medical record. There are no special procedures, visits, or expectations of you as a result of participation in this registry. You will not be asked to have any specific testing for the sole purposes of research.
Consent Documentation
Contact ¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾«Æ· Children's Clinical Trials
<strong>Trial Name:</strong> Rhizomelic Chondrodysplasia Punctata Registry at ¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾«Æ· Children’s Hospital, Delaware<br />\n</p>\n"}} id=text-00691a034f class=cmp-text>
Trial Name:ÌýRhizomelic Chondrodysplasia Punctata Registry at ¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾Ã¾«Æ· Children’s Hospital, Delaware
Is a Clinical Trial Right for Your Child?</h2>"}} id=text-c4ad338218 class=cmp-text>
Is a Clinical Trial Right for Your Child?
Learn more about clinical trials and get answers to questions you might have.</p>\r\n"}} id=text-baafb8839c class=cmp-text>
Learn more about clinical trials and get answers to questions you might have.
